Hello again

Hello again

Wednesday, January 27, 2010

Jan 27th, 2010

Jaime is 6 week's old now. Gosh time is just flying by!

Here are a few videos I took over the last few days. Hope you enjoy them.

Jaime smiling:
http://www.youtube.com/watch?v=rSQG8xeyd-o

Ash and Jaime:
http://www.youtube.com/watch?v=wtsTvsfKtbE

Ash in her car!
http://www.youtube.com/watch?v=2m7eCDgBxNE

Cheers, Car x

2 comments:

  1. Hi Ger, Caroline, Ashling and Baby Jaime.
    The photos and video clips of you are soo cute.Thanks for sharing them with us, Ger you are looking very fit at the end of the iron man. Caroline you look great, the girls are beautiful, we better watch out if Ash has now got a driving licence!!!!
    Love Auntie Denise

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  2. I sent this message because someone had mentioned you had been through this as well. I sent her the same message in hopes that one of you might be willing to point me in the right direction.

    Hi there,
    Im Carolynne and I wanted to know I really appreciate you sharing your story with all of us. My first son Nathaniel had the lethal type (Lethal Multiple Pterygium Syndrome) and in 2004 Dr.Chen who was about to publish on this. He is a specialist versed in this disorder told us that our son was one of 150 cases actually born (he was stillborn). With the lethal type they tend to terminate while in the moms belly. So, even with a 1 in 4 chance of it happening again and with all the risks of our future children being carriers etc. We went ahead and had Joey Dec of 2004 and Carina 2006. Dr. Chen told us at that time, that our children could have some part of the disorder (of the non lethal type) and not nec have the arthogyposis etc. I have been doing some research and I noticed that there was a few that developed symptoms as time progressed. Also, I saw the newer article about what they were isolating as far as the disorder. My son who is now 5 we noticed that his shoulders are adducted forward (hard to explain). But, they are pushed forward and we noticed a few other things. My daughter has had some serious issues and after being hit with a dose of reality, I believe its time to seek someone who can look a little deeper into what is going on with our children. I live in Florida and it seems that rather then look at the situation (the LMPS) they send me to specialist and they tune that out. No one has encountered it and we aren't even sure where to start now.
    I was wondering if you knew a doctor who is well versed in LMPS and point us in the right direction? I would so greatly appreciate it.. Carol

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