Ash is doing well, still eating very little but she seems to be perfectly happy and healthy so we have stopped worrying about her weight.
You should enjoy the following video....it's very cute!
http://www.youtube.com/watch?v=jn2MWyldPjg
Lots of love x
Hello again
Friday, June 26, 2009
Friday, June 12, 2009
Botox is working!
Well it looks like the botox injections are working as Ashling's legs are responding nicely. The bend has decreased in both legs! We are really pleased. Only drawback is that Ashling's Orthopaedic Surgeon wants her to wear the splints 24/7 for 3 months now, instead of 3 weeks! We are negotiating it at the moment as her Physio thinks that this may be too long and that Ash will lose a lot of the strength that she has built up in her legs. We'll have to wait and see.
Ash has been incredibly tolerant of the splints, she has just found new ways of doing things.
Her eating and drinking is still our biggest challenge - we're not really sure how she is surviving as she seems to eat like a sparrow! Anyhow, she'll get there but let's just say, she'll never be a very big person!
I took a few videos the other night of her showing some of her party tricks. She was just about to go to bed and so was a bit tired but they are still cutish.
http://www.youtube.com/watch?v=dGLzblxbCgE
In this one she was getting tired but she still enjoyed her songs - a little bit!
http://www.youtube.com/watch?v=e0yzR26DkZ8
That's all for now. Thanks for taking the interest to look at this. Lots of love xxx
Ash has been incredibly tolerant of the splints, she has just found new ways of doing things.
Her eating and drinking is still our biggest challenge - we're not really sure how she is surviving as she seems to eat like a sparrow! Anyhow, she'll get there but let's just say, she'll never be a very big person!
I took a few videos the other night of her showing some of her party tricks. She was just about to go to bed and so was a bit tired but they are still cutish.
http://www.youtube.com/watch?v=dGLzblxbCgE
In this one she was getting tired but she still enjoyed her songs - a little bit!
http://www.youtube.com/watch?v=e0yzR26DkZ8
That's all for now. Thanks for taking the interest to look at this. Lots of love xxx
Monday, June 1, 2009
Botox Done!
Well Ash had her botox injections and her hamstrings have been somewhat paralysed in an effort to relax the back of her legs. As there is still a bend in both knees stopping her from straighening her legs, the aim of the botox is to allow the physio to stretch her legs and try to get some of the bend to release over time. She's now wearing splints 24/7, which is pretty hard on her cause she can't bum shuffle around the place or ride around on her bike. She was very frustrated for a day or two but it's amazing how much she's already adapted to them. She can now bum shuffle a little bit and she's being incredibly tolerant of them. She'll probably have to wear them for about a month. Hopefully by the end of that time, her legs will be a bit straighter.
In regards to her eating, she hasn't made much progress unfortunately. But hopefully with time, she will take more interest and start chewing food etc.
Besides all of that she is doing wonderfully and is SO much fun at the moment!
I will update with some photos and videos next week.
Cheers, Car x
In regards to her eating, she hasn't made much progress unfortunately. But hopefully with time, she will take more interest and start chewing food etc.
Besides all of that she is doing wonderfully and is SO much fun at the moment!
I will update with some photos and videos next week.
Cheers, Car x
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