Success!!!!!

Tis with a glass of vino in hand that I write that Ashling is getting there!!! The progress she's making is phenomonal!

We stopped her last tube feed 3 days ago, following excellent advice that we've been getting from the Feeding Clinic in Austria. Since then she has started really increasing her fluid intake and her drinking has become so much more efficient. She still hasn't really managed to eat much but she's trying incredibly hard and tries something new each day. She is so careful though and can only successfully manage bite and dissolve type of food at the moment. She's loving being in charge of it all though. After a year and a half of getting tube fed, irrespective of whether or not she's wanted it, Ash is now in the driver's seat and she really likes that. She still needs a lot of encouragement and gets very grumpy these days, mostly because she's hungry but she doesn't recognise that feeling.

Overall, we are absolutely thrilled with her progress but she still has a long, long way to go....

Thanks a million for all the ongoing prayers and support xxx

Ps: Took Ash out for a while this arvo and I just couldn't believe how easy it was to bring food for her - took a drink and some crackers for her (to lick!). No tube extention, tape, 60ml syringe, bottle, pureed food , formula milk, sterile water, 10ml syringe.....No, just a drink and a snack! WOO HOO!!!!! Bring it on!